Elderly woman looking down indoors

The signs that death is approaching in dementia — what to look for and what to expect

In the final stage of dementia, sometimes called stage 6, there are recognisable signs that death may be approaching. The person typically becomes largely or entirely non-verbal, spending most of their time asleep. They lose the ability to walk, sit upright, or hold their head up, and muscle contractures can develop. Swallowing becomes very difficult, leading to reduced food and fluid intake. The skin may become mottled, particularly on the hands, feet, and knees. Breathing often becomes irregular, with longer gaps between breaths. Hands and feet may feel cold to the touch while the core remains warm. These changes can occur over days or weeks. Specialist palliative care teams and hospice nurses can support both the person and their family through this final stage.

Frequently Asked Questions Related to end of life

Grieving someone you lost in stages — the particular weight of dementia bereavement

read this FAQ

Support for bereaved dementia carers — the help available for a grief that doesn't fit the usual shape

read this FAQ

Registering the death of someone with dementia — the practical steps, plainly explained

read this FAQ

When your parent with dementia dies in a care home — what happens next and what can wait

read this FAQ

Grieving someone who is still alive — the loss that begins long before dementia ends

read this FAQ

What a good death looks like for someone with dementia — and how to make it possible

read this FAQ

How to talk to a care home about end of life — the conversation to have before it's urgent

read this FAQ

Where someone with dementia should die — why the care home is usually the right answer

read this FAQ
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